Lolly

Hi

Sjogrens yes it is hard as you say to get a definite diagnosis..the difference between Thyroid related and Sjogrens Dryness could be the combo of Dry Mouth & Dry Eyes.

My Mouth started off Dry after a cold..and I thought it was that just hanging around at first..then Iwould awake with my tongue stuck to the roof of my mouth and my lips stuck to my gums and a sore upper mouth and throat..

If you feel your eyes are Dry some advice...get them checked asap at areputable Ophthal as damage can occur rapidly..my eyes were perfect and within 4 months I had noticable Corneal Erosion..due to the fact that I didnt think it was as bad as it was and that I didnt think I could have Sjogrens.

In the meantime please buy some drops for dry eyes to keep them in good shape...it dosent matter what is causing them to be dry if they are dry you need lubrication.

BTW My Doctor would not test me for Sjogrens so I asked him for a referall to the Opthal for my sore eyes..it was at the Ophthal that I got Diagnosed with Sjogrens..the Ophthal did the Schirmers Tear Production Test and found I was bone dry in both eyes.

The Schirmers test is simply blotting paper strips put in your bottom lids..and they time it to se how far moisture travels up along the strip.

Doctor had a hard time eating humble pie after that ! As Donald trump says Doc 'Your Fired !'

Avicel Filler is the filler Skip Lenz recommends..

Lolly I wish you all the best..hopefully you dont have Sjogrens symptoms..

Jon

hope wrote Lolly Hi Sjogrens yes it is hard as you say to get a definite diagnosis..the difference between Thyroid related and Sjogrens Dryness could be the combo of Dry Mouth & Dry Eyes. My Mouth started off Dry after a cold..and I thought it was that just hanging around at first..then Iwould awake with my tongue stuck to the roof of my mouth and my lips stuck to my gums and a sore upper mouth and throat.. If you feel your eyes are Dry some advice...get them checked asap at areputable Ophthal as damage can occur rapidly..my eyes were perfect and within 4 months I had noticable Corneal Erosion..due to the fact that I didnt think it was as bad as it was and that I didnt think I could have Sjogrens. In the meantime please buy some drops for dry eyes to keep them in good shape...it dosent matter what is causing them to be dry if they are dry you need lubrication. BTW My Doctor would not test me for Sjogrens so I asked him for a referall to the Opthal for my sore eyes..it was at the Ophthal that I got Diagnosed with Sjogrens..the Ophthal did the Schirmers Tear Production Test and found I was bone dry in both eyes. The Schirmers test is simply blotting paper strips put in your bottom lids..and they time it to se how far moisture travels up along the strip. Doctor had a hard time eating humble pie after that ! As Donald trump says Doc 'Your Fired !'   Avicel Filler is the filler Skip Lenz recommends..   Lolly I wish you all the best..hopefully you dont have Sjogrens symptoms.. Jon

Hi Jon,

I wouldn't give up hope on LDN just yet, it may take some people longer than others I doubt it has increased your AB's but your thyroid levels are low TSH high so that could be one reason also increased dry eyes do you have Thyroid eye disease as well? At least it will be supporting your immune system and that's one of the reason I started taking it, as I seem to be getting one AI disease after another.

I do lubricate my eyes with celluvisc I know how important it is to keep them moist. I'm going to see if my Ophtho will test  how dry they are and have taken a note of the test, He always comments about how dry they are, I even take flaxseed.

Since starting LDN I found they weren't as dry and instead of lubricating every 2 hours I found myself just lubricating about every 4 ,maybe I should continue with the 2 hourly just too keep on top, also the mouth. I see the dentist on Thursday so she will be able to say how dry it still is.

It sounds like you have so much going on all at once and like you said it's hard to pinpoint which one is causing the most problems.

So the filler is okay then skip recommends it, I make my own LDN from River pharmacy as I'm in the UK and trying to get a good doc to Rx well think that would be costly and also hard.

I'm taking all the info I have to my Ophtho next appointment.

I wish you all the best too.

Lolly